LIST OF FILES AND LINKS
(Files and Links updated 24 July 2008)


This list is of files and links from my WG web page at http://www.wegenersgranulomatosis.net that are relative to WG & Vasculitis.  The files have been updated when needed.  I can’t guarantee that all the links are still good, but most are.
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Notes:        Html files (shown in bold, underlined blue) are viewed by web browser.
Adobe Acrobat .pdf files must be downloaded to view.
                   Microsoft Word (.doc) files have to  be downloaded to view.

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    # Identifies files the content of which was created by a person with no medical training.

    FILE NAME  SIZE WORD
PAGE#
SUBJECT
    Abbreviations_and_Acronyms.htm   224 KB 66
  Three sections of abbreviations and acronyms
    Advances in therapy wegener's.pdf   452 KB
65
  2006-Remission/Maintenance/Stages/States/Definitions
    ANCA - Antigens and AI Diseases.html     12 KB 24
   Fifteen antigens/ANCA patterns/Related AI diseases
    ANCA-Detection.html
    64 KB 23
   Why & How to test for ANCA
    ANCA-disease_associations
       4 KB 23
   Positive ANCA and percent affected
    ANCA Test Interpretation.gif           
   10 KB 19
   Graphic of ANCA interpretation
 # Anti-Inflammatory Foods.html      .    32 KB 54
   Listing of foods, both good and less good
            (Cyndi Olsen’s material as edited)
   Avascular Necrosis and
   Glucocorticoid_Use.html
  56  KB 31,41
   Femoral head damage




 # Baseline Tests.html        
   36 KB 17,21,59
   Baseline Medical Tests when first diagnosed
    Biological Drugs in Development.html       
   36 KB 34
   Most not commercially available
    Biphosphonate Tabel-2004.html      
     8 KB 36
   2nd and 3rd generation biphosphonates
    Blood_Vessel_Damage.jpg       
     8 KB 2
   Graphic X-section of 3 damaged vessels




# Cytoxan_and_Fertility.htm      
   28 KB 31
   Discusses effects of Cytoxan & preserving fertility




   Dealing_with_people_in_pain.html     
     8 KB 7
   Tips on dealing with people in pain
   DEI_SCORE.html
     8 KB 21
   Disease Extent Index
   Diagnosing_Autoimmune_Diseases.html    56 KB 14,17
   AARDA Diagnostic guide for autoimmune diseases
# Disease_&_Dental%20Health.html
   24 KB
52
   Gum Disease can have systemic affects




   educational brochure12.doc
 980 KB
40
  Trifold brochure-Effects of AV on education
# Email for new AV Patient.doc       
   48 KB 6
   Introduction to AVs for patients/carers
# Email for new WG Patient.doc    
   52 KB 59
   Introduction to WG for patients/carers
# Email_Guidelines.html
   16 KB
6
   Suggestions - Email groups and Message Boards
#



# Files and Links.html    84 KB
1
   This list
   Fructose_Dangers.html
   36 KB
54
   Fructose (a sugar) found in many processed foods
  Hemapheresis (Plasmapheresis)
 204 /KB
47
   Guidelines on using plasmapheresis
  Herbs & Alternative Meds.html   108 KB
   Web addresses for info on herbs and alternative meds
   Hospital-Stay Alive.html   
   48 KB 16
   How to leave hospital alive
  
 

    Table of resources on herbs and alternative meds.
  ImageBOU.JPG   
   16 KB 61
   Illustration of usual WG targets
   ImageRJN.JPG  
   28 KB 10
   Illustration of blood vessel sizes vs AV
  Immunosuppressives - the first 50
   years.html    
     8 KB 32
   First 50 years and looking forward
  Immune System Ablation.html        
   12 KB 48
    Immune Abletion as therapy for AV
  Inflammations_of_the_Eye.html    
     8 KB 58
   Brief description of some conditions
  IVIg-Off Label Use
 120 KB 
48
   11 slides in PowerPoint format on 3 pages




   Lab Conversion Table.html      
 104 KB 17
     Converts between U.S. & Standard International
# List_of_Slide_Shows.html       
   24 KB 4,66
    Vasculitis and WG related




   Medical_Information_Bureau.html    
     8 KB 8
    Medical records for U.S. insurance co’s.
# Medical-Search.html 
   36 KB 67
    Finding medical info. via internet & other ways




   Osteroporosis_Update.html 
   24 KB 36
    Current Osteoporosis Therapy (2004)
# Peripheral Neuropathy.htm         
     8 KB 38
    Treatment of P.N. Edited from a D.O.
   pharmocological therapy wegener's.pdf
 780 KB
65
    Drugs - 2006 article
   Pregnancy_and_Vasculitis
   40 KB
13
    November 2007 article (as edited)




# Questions_and_Background.html   
   44 KB 7,27
    76 questions about vasculitis & why ask




# Recommended Reading List
   16 KB
7,66
   Books on vasculitis and autoimmune disease
   Rocognizing_a _Stroke.html   
     4 KB 58
    Simple three setp test
# Side_Effects.html           
   41 KB 31,35
    Cytoxan and prednisone side effects
   Students & Medications.doc
996 KB
7
    Trifold brochure on effects of medication on learning




   Take-Along Medical Info.htm   
   12 KB 3,8
    Info. an AV patient should carry
   Talking_About_Symptoms.html      
   12 KB 27
    Some suggestions on how to
   Testing & reporting ANCA 2003.pdf
96 KB
18
    Authoritative paper on interpreting ANCA results
   Tips to prevent medical errors.html     
   24 KB 16
    From National Institute of Medicine (edited)
   Thorax.pdf
  1.3 MB
41





   Vasculitis - Causes.html      
     8 KB 2
    Edited from Clin Exp Rheumatol.  2006
# Vasculitis -   Email groups.html     
   20 KB 6
    Partial List of  AI and AV Email Groups
# Vasculitis Primer.ppt  
  1.5 MB 4,59
   Download forty-six slides for general public
# Vasculitis Slide Presentations.html   
   20 KB
4
    List of Vasculitis related slide shows
   vasculitis-NHS-Patient-brochure.pdf
  268 KB
4
    Great Ormond St. Hospital - 13 pages
# Vasculitis-URLS.html   
 120 KB 59,66
    Vasculitis & WG Related Web Pages
   VF Brochure.pdf
   70 KB
59
    Vasculitis Foundation English Language Brochure
   VF International Consultants.html   
     8 KB 15
    Vasculitis Foundation Consultants
# Vasculitis and WG-Tests.html             
   52 KB 17
    Tests in SAV/WG – Eight Sections




# WG_and_AATD.html  
   24 KB 20
    Alpha-1 anti-trypsin deficiency (AATD)
   WG Powerpoint-1999-37 slides.pdf   

59
    Slide show on WG
   Your_Medical_Records.html   
   12 KB 8
   Importance of having your own files






THE FOLLOWING ARE LINKS FROM MY WEB PAGE   (Most of these should work)
Page No. (rewrite Rev 2)

ANCA Testing and Interpretation - Laboratory standard in the diagnosis
and therapy monitoring of autoimmune disease-vasculitis pg 18]
http://www.ifcc.org/index.php?option=com_content&task=view&id=346&Itemid=31

Antibodies
- Monoclonal  - List of Monoclonals in development (out of date?)
http://www.bitsplace.com/bitsplace/Autoimmunediscomp.html 

Arthritis Research Campaign - U.K. - Vasculitis [pg 4]
http://www.arc.org.uk/arthinfo/patpubs/6047/6047.asp

Autoimmune Message Board
http://pathology.jhu.edu/autoimmune_chat/

Bactrim Desensitization - Univ. of Washington [pg 32]
http://depts.washington.edu/madclin/providers/protocols/bactrim.htm

Chat -
Web page access to IRC -  9 PM EST/1 AM GMT Monday [pg 60]  
http://www.newnet.net/newnewnet/jirc/chatme.html

Clinical Trials
Nat’l. Institute of Health                                              
http://www.clinicaltrials.gov
http://clinicaltrials.gov/ct/screen/AdvancedSearch
European Clinical Trials
http://www.med.cam.ac.uk/nephrology/research/vasculitis.html
http://www.vasculitis.org/progress.htm
CTLA-4 Clinical Trial - Abatacept [pg 46]
http://clinicaltrials.gov/ct/show/NCT00482066?order=1
Rituximab Clinical Trial for Autoimmune Vasculitis [pg 45]
http://www.immunetolerance.org/RAVE/
Possible side dangerous side effect
http://www.rheumatology.org/publications/hotline/0107leuko_email_20070102.asp

Email Client Program for IRC on PC - mIRC
http://www.mirc.com/

Email
Client Program for PC [pg 6]
http://www.mirc.com/ 
Yahoo Groups
http://groups.yahoo.com/
Guidelines on use
http://www.wegenersgranulomatosis.net/Email_Guidelines.html

Exodus Web Hosting
         http://www.exoduswebhosting.com    

European Immuno-absorbtion
  Devices and Practices
http://www.uninet.edu/cin2000/conferences/braun/braun.htm

Exodua Web Hosting
http://www.exoduswebhosting.com                                                                            1

Facebook [pg 6]
http://www.facebook.com/

FAX - How to send fax from your computer
http://www.protus.com
http://www,efax.com   

Glossary of Medical Terms [pg 28,66]
http://vasculitis.med.jhu.edu/whatis/glossary.html

Hemophereis (Plasmapheresis)
http://www.wegenersgranulomatosis.net/Hemapheresis Guidelines.pdf

Immune Test Panel
http://depts.washington.edu/labweb/Divisions/Imm/ImmTesting/index.htm

Laboratory Tests
Standards - Autoimmune Diseases [pg 25]
http://www.ifcc.org/index.php?option=com_content&task=view&id=346&Itemid=31
Autoimmune Test Panel [pg 17]
http://depts.washington.edu/labweb/Divisions/Imm/ImmTesting/index.htm
Methotrexate and Folic Acid
http://www.aafp.org/afp/20001001/1607.html

MySpace - Health and Wellness Blogs [pg 6,60]]
http://searchresults.myspace.com/index.cfm?fuseaction=groups.ListGroups&categoryID=17

Nasal Irritagion
Breathease Irrigation Fluid
http://www.pharmacy-solutions.com/  [pg 50]
Nasal Irrigation - InterPlax [pg 51]
http://www.conair.com/conair/products/detail.jsp?product=128 
Nasal Irrigation - Information on
http://www.nasalrinse.com 
Nasal Irrigation Items
http://www.naturalsinushealth.com
http://www.pharmacy-solutions.com/  

Nasal Irrigation - HydorMed
http://www.hydromedonline.com/
Nasal Irrigation - Hydropulse [pg 51]
http://www.pharmacy-solutions.com/hydropulse.pdf
Nasal Irrigation - Mayo Clinic Video
http://www.mayoclinic.com/health/nasal-lavage/MM00552

National Center for Biotechnical Information (NCBI)
http://www.ncbi.nlm.nih.gov/

National Institutes of Health (U.S.)
Institute Of Infectious and Allergic Diseases  (NIAID)          
http://www.niaid.nih.gov
Division of Allergy and Immunology Testing
http://www.niaid.nih.gov/cgi-shl/contacts/contacts2.cfm?abbreviation=DAIT    
Laboratory of Immunoregulation
http://www/niaid.nih.gov/dir/labs/snelle
          
National Library of Medicine
 Gateway Access [pg 65]
http://gateway.nlm.nih.gov/gw/Cmd
http://gateway.nlm.nih.gov/rd/www.nlm.nih.gov/medlineplus/healthtopics.html
http://gateway.nlm.nih.gov/rd/www.nlm.nih.gov/medlineplus/encyclopedia.html
http://gateway.nlm.nih.gov/rd/www.nlm.nih.gov/medlineplus/newsbydate.html
http://gateway.nlm.nih.gov/rd/ghr.nlm.nih.gov
http://dirline.nlm.nih.gov/
http://clinicaltrials.gov/

MedlinePlus [pg 65]
http://www.nlm.nih.gov/medlineplus/
http://www.nlm.nih.gov/medlineplus/druginformation.html
http://www.nlm.nih.gov/medlineplus/mplusdictionary.html
http://www.nlm.nih.gov/medlineplus/directories.html
http://www.nlm.nih.gov/medlineplus/libraries.html
PubMed Centeral  [pg 66]
http://www.pubmedcentral.nih.gov/

National Center for Biotechnical Information [pg 66]
http://www.ncbi.nlm.nih.gov/

Osteoporosis Tutorial [pg 36]
http://www-medlib.med.utah.edu/WebPath/TUTORIAL/OSTEO/OSTEOPOR.html
[pg 36]

Patient Records
- Forms for AV
http://vasculitis.med.edu/resources/forms.htm

Pharmaceuticals - Information on
[pg 35]
http://www.rxlist.com
http://www.nlm.nih.gov/medlineplus/druginformation.html

Physicians - How to Talk to Physicians
http://elfstrom.com/arthritis/appointments.html

Sinusitis FAQ [pg 50]
http://www.sinusitisfaq.org

Stem Cell Transplant and AVs
http://www.nature.com/nature/journal/435/n7042/full/nature03278.html [pg 48]
http://www.nmff.org [pg 48]
Immune System Ablation wihout SCT

Symposium Information - VF/WGA 2004
http://www.wgassociation.org/aboutwga/symposium.shtml 

Urine Dipsticks-Test for protein & blood
http://www.wgassociation.org/aboutwg/dipsticks.jsp   

Vasculitis - Autoimmune Types [pg 9]
Behcet’s disease
http://www.vasculitisfoundation.org/behcetsdisease
http://www.mayoclinic.com/health/buergers-disease/DS00807
http://vasculitis.med.jhu.edu/typesof/behcets.html
Buerger’s disease
http://www.mayoclinic.com/health/buergers-disease/DS00807
http://vasculitis.med.jhu.edu/typesof/buergers.html
Central Nervous System
http://www.vasculitisfoundation.org/centralnervoussystem
http://vasculitis.med.jhu.edu/typesof/cns.html
http://www.clevelandclinic.org/arthritis/treat/facts/cns.htm
Churg-Strauss Syndrome
http://www.vasculitisfoundation.org/churgstrausssyndrome
http://www.mayoclinic.com/health/churg-strauss-syndrome/DS00855
http://vasculitis.med.jhu.edu/typesof/churgstrauss.html
http://www.clevelandclinic.org/arthritis/treat/facts/churg.htm
Cryoglobulinemia
http://vasculitis.med.jhu.edu/typesof/cryoglobulinemia.html

Giant cell arteritis aka Temporal arteritis
http://www.vasculitisfoundation.org/giantcellarteritis
http://www.mayoclinic.com/health/giant-cell-arteritis/DS00440
http://vasculitis.med.jhu.edu/typesof/giantcell.html
http://www.clevelandclinic.org/arthritis/treat/facts/polymyalgia.htm
Henoch-Schonlein purpura
http://www.vasculitisfoundation.org/HenochSchonleinpurpura
http://www.mayoclinic.com/health/henoch-schonlein-purpura/DS00838
http://vasculitis.med.jhu.edu/typesof/hsp.htm

Hypersensitivity vasculitis
http://www.vasculitisfoundation.org/hypersensitivityvasculitis

Kawasaki disease
http://www.vasculitisfoundation.org/kawasakidisease
http://www.mayoclinic.com/health/kawasaki-disease/DS00576

Microscopic polyangiitis
http://www.vasculitisfoundation.org/microscopicpolyangiitis
http://vasculitis.med.jhu.edu/typesof/polyangiitis.html

Polyarteritis nodosa
http://www.vasculitisfoundation.org/polyarteritisnodosa
http://vasculitis.med.jhu.edu/typesof/polyarteritis.html


Polymyalgia Rheumatica
http://www.vasculitisfoundation.org/polymyalgiarheumatica
http://www.mayoclinic.com/health/polymyalgia-rheumatica/DS00441
http://vasculitis.med.jhu.edu/typesof/polymyalgia.html
http://www.clevelandclinic.org/arthritis/treat/facts/polymyalgia.htm

Rheumatoid Vasculitis
http://www.vasculitisfoundation.org/rheumatoidvasculitis
http://vasculitis.med.jhu.edu/typesof/rheumatoid.html

Takayasu’s arteritis
http://www.vasculitisfoundation.org/takayasusarteritis
http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833
http://vasculitis.med.jhu.edu/typesof/wegeners.html

Wegener’s granulomatosis
http://www.vasculitisfoundation.org/wegenersgranulomatosis
http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833
http://vasculitis.med.jhu.edu/typesof/wegeners.html
http://www.clevelandclinic.org/arthritis/treat/facts/wegener.htm

Vasculitis Centers [pg 11]
University of Alabama-Birmingham
http://www.health.uab.edu/default.aspx?pid=82347
Cleveland Clinic Center for Vasculitis Research and Treatment [pg 4]
http://www.clevelandclinic.org/arthritis/vasculitis/default. htm
Johns Hopkins Vasculitis Research & Care Center [pg 4]
http://vasculitis.med.jhu.edu/
http://vasculitis.med.jhu.edu/resources/forms.htm  Medical record forms [pg 8]
Mayo Clinic - Rochester, MN [pg 4]
http://www.mayo.edu/  (Contact-Dr. Ulrich Specks)

Vasculitis Clinical Reasearch Consortium [pg 5,30]
http://rarediseasesnetwork.epi.usf.edu/vcrc/index.htm

Vasculitis - European Vasculitis Study Group - Progress Report [pg 52]
http://www.vasculitis.org/progress.htm
Vasculitis Foundation
http://www.vasculitisfoundation.org  [pg 5, 59]
Brochure [pg 59]
http://www.wegenersgranulomatosis.net/VF Bro to PRINTER6.20.pdf
VF Donations [pg 5]
http://www.vasculitisfoundation.org/donate
Patient Support Groups [pg 6]
http://www.vasculitisfoundation.org/support
Consultants [pg 11, 15]
http://www.vasculitisfoundation.org/node/44.html
Domestic Support Groups  [pg 60]
http://www.vasculitisfoundation.org/support/domestic
International Support Groups  [pg 60]
http://www.vasculitisfoundation.org/support/international

Vasculitis - "Living with Vasculitis" brochure - U.K. (Adobe Acrobat reader required) [pg4]
http://webrheum.bham.ac.uk/Vasculitis/Booklet/LivingWithVasculitis.pdf

Vasculitis - Reading List
http://www.wegenersgranulomatosis.net/VF%20READING%20LIST.html

Vasculitis - Mayo Foundation [pg 4}
http://www.mayoclinic.com/health/vasculitis/DS00513

Vasculitis - MedlinePlus [pg 5]
http://www.nlm.nih.gov/medlineplus/vasculitis.html

Vasculitis - Overview [pg 4]
http://patients.uptodate.com/topic.asp?file=arth_rhe/4492

Vasculitis Tutorial [pg 4]
http://www.nlm.nih.gov/medlineplus/tutorials/vasculitis/htm/index.htm (English)                          
http://www.nlm.nih.gov/medlineplus/spanish/tutorials/vasculitisspanish/htm/index.htm (Spanish)

WGA Association (Replaced by Vasculitis Foundation)
http://www.wgassociation.org

Yahoo Health & Wellness Groups [pg 5, 59]
http://health.dir.groups.yahoo.com/dir/Health___Wellness