THE FOLLOWING INFORMATION SHOULD BE CARRIED ON YOUR PERSON  AT ALL TIMES

15 September 2007

• The best way is to have a MedicAlert necklace or bracelet so all your important information is available with one telephone call.

• Also, carry the listed information on a laminated card or sheet in your wallet or purse.
• A computer memory stick can contain the same data and is easily carried on a keychain.
• MedicAlert will sell you a memory stick with all the date on it that you provide, but it's probably less expensive to do it yourself from a file you prepare on your computer.
• This information may be available as a printout from your dr. or from help groups.

• Having this information readily available is  important as with some diseases some observations that are normal for you would be classed as abnormal on a person without your disease, and may lead to unnecessary interventions to correct something that is "normal" for you.

• 1. Full name and date of birth.

• 2. Full address, phone number and cellular number.
  

• 3. Next of kin, relationship, address, phone numbers, cellular numbers.

• 4. Medicare number.

• 5. Private health provider if applicable, membership number and coverage level if relevant.

• 6. Doctors  *GP*, name address, contact phone number, email.

• 7. Main specialist looking after the vasculitis, type of specialist, name, address, phone, email.

• 8. Other specialists by type of specialist, name, address, phone, email.  List them all.

• 9. If next of kin not available name, relationship, address, contact phone and cellular.

• 10. Current *medications*  Medical name or generic name, doses, schedules.

• 11. Known allergies.

• 12. Itemized medical history  Brief highlights, including year diagnosed and treatment.

• 13. Rare disease information - Vasculitis Foundation - http//www.vasculitisfoundation.org

• Wegener's Granulomatosis (WG) is a rare form of vasculitis; that is, a disease characterized by inflammation of the walls of the blood vessels. This inflammation can result in damage to vital organs of the body by restricting blood flow to those organs.

• WG  normally begins as a localized granulomatous inflammation of the nasal mucosa (lining) and lung tissue, and usually progresses into generalized necrotizing (gradual degeneration) granulomatous (tumor-like) inflammation of the blood vessels.

• WG is an autoimmune disease, meaning the body's immune system attacks its own body tissues. It presents a variety of symptoms easily mistaken for other more common ailments.

• 14. Religion.

• 15. Dietary requirements.

• 16. Pathology provider  Include copies of any recent test results, even if normal by our standards, this gives an indication of your normal baseline so that new test results may be compared with earlier recent findings.
  

• 17. Home carer services if used  list names and phone numbers.