AUTOIMMUNE VASCULITIS & WEGENER'S GRANULOMATOSIS

WEB PAGE ADDRESSES

Last update - 3 January  2010

            (Please notify blades49456@sbcglobal.net of non-working web pages listed below)

1. WEGENER'S GRANULOMATOSIS WEB PAGES

    Vasculitis Foundation, International Web Page (The best place to start)
      http://www.vasculitisfoundation.org or http://www.wgassociation.org

    Encyclopedia Britannica article
      http://www.britannica.com/eb/article-9076424/Wegener-granulomatosis

    German Patient's WG page
      http://www.vaskulitis.org

    Italian WG Page (Merck Manual)
      http://www.msd-italia.it/altre/manuale/sez05/0500480.html

    Mike Clay's Web Pages
      http://www.weareb.org/WG
      http://www.weareb.org/mailman/listinfo/wg-discussion   (WG e-mail group)
      http://www.weareb.org/WG/chat.jsp                                       (Info on Internet Relay Chat)
      http://www.weareb.org/WG/help.html                                     (Mailing list hints and tips)

    New Zealand WG Web Page                                                        (Under Construction-come back later)
      http://canterbury.cyberplace.org.nz/environment/wgsupportgroup/

    Nowegian Wegener's Granulomatosis Page
      http://home.c2i.net/flatens/index.html

    Wegener's Granulomatosis - Audio MP3 Recording
      http://www.jon-strickland.com/downloads/Jon-Strickland-Vasculitis.mp3

    Wegener's Granulomatosis - Therapeutics 2006
       http://www.medscape.com/viewarticle/529310_1

    Wegener's Granulomatosis - emedicine.com
      http://www.emedicine.com/med/topic2401.htm

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2. RELATED VASCULITIS & WG WEB SITES

    14th International Vaculitis and ANCA Workshop (6-9 June 2009, Lund, Denmark)
      http://www.malmokongressbyra.se/kongress/index.php?id=1075&s=131

    Akron Children's Hospital Vasculitis Clinic
      https://www.akronchildrens.org/cms/site/97e4e21057a40be6/index.html

    Autoimmune Blood Test Chart - Univ. of Washington - Immunology    [Currently not available]
      http://depts.washington.edu/labweb/dept/div/imm/refchart.html

    Autoimmune Diseases - NIH
      http://www.niaid.nih.gov/dait/pdf/ADCC_Report.pdf

    Autoimmunity & Nervous System   (Involvement of vagus nerve in inflammation cascade)
      http://www.eurekalert.org/pub_releases/2007-10/nsij-sda102307.php

    Bactrim Desensitization Protocol
      http://depts.washington.edu/madclin/providers/protocols/bactrim.htm

    European League Against Rheumatism/European Vasculitis Study Group
      Recommendations for the Management of Vasculitis - Dec 2009     [must register with Medscape to view]
      http://www.medscape.com/viewarticle/713287

    German Vasculitis Support Group
      http://vaskulitis.org

    Immune System Description
      http://www.merck.com/mmhe/sec16/ch183/ch183a.html#sec16-ch183-ch183a-10

    Immunology - Molecular   
      http://www.mi.interhealth.info/

    Management of Herpes Zoster (Shingles)
      http://www.aafp.org/afp/20000415/2437.html

    Nephrology & Dialysis
      http://kidney.niddk.nih.gov/kudiseases/pubs/hemodialysis/

    The Netherlands Vasculitis Page
      http://www.vasculitis.nl

    Plasma Exchange
      http://www.mdausa.org/publications/fa-plasmaph.html
      http://arar.essortment.com/plasmapheresis_rdqq.htm               (Risks of apheresis)
      http://www.regence.com/trgmedpol/medicine/med05.html

    Peripheral Neuropathy
     http://www.medicinenet.com/Peripheral_Neuropathy/article.htm

    Vasculitis - 14th International Vasculitis and ANCA Workshop
       http://www.anca2009.com

    Vasculitis - Self-help booklet (British)
      http://www.lupusuk.com/selfhelpinvasculitis.asp

    Vasculitis - Addenbrooke's Hospital, U.K.
      http://www.addenbrookes.nhs.uk/serv/clin/med/vasculitis1.html  

    Vasculitis, Amyloidosis, Immunodeficiency
      http://www.pathguy.com/lectures/imm-iii.htm                       (With Drawings, scroll down)

    Vasculitis FAQ - Vasculitis Clinical Research Consortium
      http://rarediseasesnetwork.epi.usf.edu/vcrc/learnmore/faqs.htm

     Vasculitis Foundation - 2008 Symposium - Rochester, MN
      http://rarediseasesnetwork.epi.usf.edu/vcrc/news/2008symposium.htm

    Vasculitis - Great Ormand Street Hospital - U.K.     
      http://www.ich.ucl.ac.uk/gosh_families/information_sheets/vasculitis/vasculitis_families.html  (Web Page)

    Vasculitis - Italian
      http://www.vasculiti.it/ 

   Vasculitis - MedlinePlus tutorial on vasculitis
      http://www.nlm.nih.gov/medlineplus/tutorials/vasculitis/htm/index.htm

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3. MEDICAL RESOURCES ON-LINE

    ACR Booket on Vasculitis
      http://www.arc.org.uk/about_arth/booklets/6047/6047.htm

    American College of Rheumatology-Patient information on autoimmune diseases
      http://rheumatology.org/public/factsheets/index.asp?aud=pat&CFID=4274348&CFTOKEN=59301871#2

    Accessing Health Care in Europe
      http://www.eccdublin.ie/publications/leaflets/subject_guides/health.pdf
      http://www.oasis.gov.ie/health/hospitals/hospital_treatment_abroad.html

    Angel Flight - air service at no cost for patients     
      http://www.angelflightmidatlantic.org/                                 (MidAtlantid U.S.)
      http://www.angelflightne.org/                                                 (Northeast U.S.)
      http://www.angelflight.org/                                                      (West U.S.)

    Autoimmune Diseases (On-line, open access journal)
      http://www.jautoimdis.com/content/pdf/1740-2557-1-1.pdf

    Autoimmune Glossary
      http://pre-pg.blogspot.com/2007/07/glossary-of-immunology.html

    Best Doctors - Online Brochure
      http://www.bestdoctors.com/en/default.htm

    Best Hospitals - U.S. News and World Report
      http://www.usnews.com/usnews/nycu/health/hosptl/tophosp.htm

    Biology Pages - Searchable
      http://biology-pages.info/  

    Cleveland Clinic - Center for Continuing Medical Education
      http://www.clevelandclinicmeded.com/online/text-based.aspx     CME Text
      http://www.clevelandclinicmeded.com/online/webcasts/                CME webcasts
      http://www.clevelandclinicmeded.com/online/podcasts/                CME podcasts  

    Diagnostic Criteria
      http://www.medicalcriteria.com

    European Vasculitis Study Group (EUVAS)
      http://www.vasculitis.org

    Groupe Francais d'Etude de Vascularities
      http://www.vascularite.com

    Guidelines to Clinical Practice
      http://www.guidelines.gov/

    How to check out your physician
      http://www.quackwatch.org/04ConsumerEducation/QA/mdcheck.html

    How Your Immune System Works
      http://www.howstuffworks.com/immune-system.htm/printable

    Immunology and Immune Defense against Microbial Pathogens
      http://www.bact.wisc.edu/Bact303/Immunology

    Insurance Codes (Used to code procedures and conditions-ICD9) 
      http://icd9cm.chrisendres.com/

    International Network for the Study of Systemic Vasculitides
     http://www2.ccf.org/inssys/INSSYSsites.htm
      http://www2.ccf.org/inssys/addressllist.htm

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4. GETTING CONNECTED - E-MAIL GROUPS

      http://www.weareb.org/mailman/listinfo/wg-discussion
         wg-discussion@weareb.org                            (Wegener's granulomatosis, non-moderated)

      http://groups.yahoo.com            Search for Yahoo Groups

      http://www.medportal.com/dejanews.html             (Search Google for Medical Newsgroups)
  

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5. GETTING CONNECTED - MES'G. BOARDS/LIVE CHAT/WEB PAGES

    Brian's WG Web Page with Live Chat                                       (Live chat requires JAVA enabled)
      http://www.wegenersnet.org/index.jsp   

    CaringBridge - a way to communicate with others with similar afflictions.
      http://www.caringbridge.org/about.htm

    Johns Hopkins Autoimmune Message Board (No longer available as of 20 April 2008)
      http://pathology.jhu.edu/autoimmune_chat/

    Lupus and Autoimmune Message Board                               (Rarely has messages pertinant
      http://members4.boardhost.com/sblrd/                                    to Wegener's Granulomatosis)

    WG Live Chat on Monday's 9 PM Eastern Time                    (Requires IRC client program
     http://www.weareb.org/WG/chat.jsp                                         such as mIRC or IRCLE or use newnet.net)

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6.  PERSONAL WG WEB PAGES

    Andrew's WG Web Page
      http://www.wegeners-granulomatosis.com

    Arnie's WG  Web Page
      http://arniemarge.tripod.com/arnieepistle.html   

    Sandra Baruta's Web Page on WG
      http://www.angelfire.com/ga/wegeners/           (Last updated 22 Feb. 1999)

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7. PHARMACEUTICALS

    Prescription Assistance - The Senior  Alliance   
      http://www.aaa1c.org/consumers/resource13.htm

    American Society of Health System Pharmacists -The consumer site
     http://www.safemedication.com

    Drug Interactions - checking for (MacIntosh users may only see a limited list of medications)
      http://www.drugdigest.org/wps/portal/ddigest 

    ExpressScripts (a big pharmacy benefits manager) - The consumer site
      http;//www.drugdigest.org

    Federal Drug Administration (U.S.)
      http://www.fda.gov/cder/consumerinfo

    Herbs and supplements - Independent testing
      http://www.consumerlab.com/

    Immunomodulatory xenbiotics/Immunomodulators/immune response modifiers.
       http://focosi2.altervista.org/immunomodulatory.html

    Institute for Safe Medication Practices
     http://www.ismp.org

    Medical Necessity for Rituximab (Rituxan)
      http://www.omsusa.org/pranzatelli-insurance-Rituximab.htm
    
    Mesna
      http://www.patient.co.uk/showdoc/30003790/ 

    Methotrexate
      http://www.aafp.org/afp/20001001/1607.html 

    National Library of Medicine - Chose "Medications"
      http://www.medlineplus.gov

    Off-label Medications
      http://www.ahrq.gov/consumer/cc/cc042109.htm

    Pharmaceuticals (Links to Drugs and Medications)
      http://www.pharmacychoice.com/resources/drugdata.cfm

    Physicians Desktop Reference Ad supported site (Thompson Healthcare)
     http://www.drugs.com
  
    Prednisone and other glucocorticoids
      http://www.uspharmacist.com/NewLook/CE/glucocort/lesson.htm
   
    Prescription Assistance - The Senior  Alliance   
      http://www.aaa1c.org/consumers/resource13.htm

    Prescriptions Assistance - Medicare
      http://www.ssa.gov/prescriptionhelp/

    Prescriptions - Information on abbreviations
      http://media.everypatientsadvocate.com/columns/2007/0807-rxabbreviations.htm#abbreviations

    Prescription Drug Monographs - Keyword Search
      http://www.rxlist.com             (Drug Information) 
      http://www.cancer-info.com/rituxan_info.htm  (Rituximab/MabThera/Rituxan)    
      
    Rituximab (MabThera) - Patient Information 
      http://www.cuh.org.uk/resources/pdf/patient_information_leaflets/PIN1090_rituximab.pdf

     Rituximab - U.K. Protocol
      http://tinyurl.com/7s2jjl

    Sharp Foundation and San Diego Cardiac Center - Schedule
     http://www.mypillbox.org    

    Steroids - Use & Abuse in Rheumatology - Arthritis Research Campaign - 2004
      http://www.arc.org.uk/about_arth/med_reports/series3/pp/6338/6338.htm 

    WebMD (Search Drug and Herb section)
      http://my.webmd.com/medical_information/drug_and_herb/default.htm

    Worst Pills Web Page
      http://www.worstpills.org 

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8. FINANCIAL ASSISTANCE FOR MEDICATIONS

Almost all of the drug companies have programs to make free medications available to patients under so-called "Patient Assistance Programs".   

Each company is different on their specific requirements, most are based on financial need.  Some manufacturere's require only a letter from the patient's physician.  Others require substantial back-up information on rather lengthy forms.

Some will mail the medication to your home, more commonly to your physician's office, or sometimes to your pharmacy with a drug card to be used when picking up prescriptions. 

All medications supplied under a P.A. program require a prescription and most require your physicans signature.  

Physician's offices  do considerable paper work for patient assistance programs for patients.  This is time comsuming for the office staff.  Preparing the paper work is a gift.  The physician receives no compensation to reimburse the cost of assisting the patient.

Because it is a free service by the physician and his staff,  the patient needs to take responsibility of notifying the office when the next renewal  needs to be submitted.  Usually it is needed every three months.  

Some applications can be done on the internet.  Many applications must be on forms from the drug company although some of these may be printable off the internet.  If possible, the patient should obtain the forms from the manufacturer's web page or via mail to save the physician's office unnecessary work.

    Accessing Patient Assistance Programs
       http://www.rxassist.org/

    American College of Rheumatology - Patient Assistance Programs
      http://www.rheumatology.org/public/acrast.asp?aud=pat

    Directory of Patient Assistance Programs
      http://www.helpingpatients.org/

   
    The Financial Assistance Network

      http://www.financialassistancenetwork.org/prescrip.htm

    Government. Accounting Office Report on P.A. Programs
      http://www.elderweb.com/default.php3?PageID=2303

    Healthcarecoach
      http://www.healthcarecoach.com/resources/index.php?view=detail&id=85&node=23

    Manufacturer's Patient Assistance Programs
      http://www.needymeds.com

    Medication health insurance resources - Dr. Koop's web page
      http://www.kspope.com/medications/index.php

    Nat'l. Organization for Rare Diseases - P.A. Programs
      http://www.rarediseases.org/other/other.htm

    Our Chronic Pain Mission
      http://www.cpmission.com/gallery.html

    Partnership for Prescriptions
      http://www.pparx.org/

    Patient Advocate Foundation
      http://www.patientadvocate.org/

    Patient Assistance - Rituximab - for physicians
      http://www.genentechaccesssolutions.com/rituxan/professional/index.jsp

    Patient Assistance for Psychologically Active Drugs
      http://www.nami.org/helpline/freemed.htm

    State High Risk Pools
      http://healthinsuranceinfo.net/managing-medical-bills/high-risk-pools-chart.htm

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9. SOCIAL SECURITY DISABILITY

There may be better recovery if you can prove your disability was "work related".  You might want to consult with a lawyer to consider filing for "third-party"/personal injury &/or Workers' Compensation benefits.

    Allsup - a legal firm specializing in disability claims on a contingency basis
      http://www.allsup.com/

   Benefits Checkup - U.S. National Council on Aging
      http://www.benefitscheckup.org/

    Disability Secrets - Tips, Secrets, & Advice
      http://www.disabilitysecrets.com/

    Private Assistance Filing Disability Claims      
      http://www.allsup.com

    Federal Poverty Guidelines
      U.S. 2002 guidelines to determine eligibility for certain programs
      http://www.rxassist.org/federal.htm

    SSD Assistance
      http://www.ssa.gov/pgm/links_disability.htm
      http://www.ssa.gov/disabilityformhelp/
     

    SS Disability Qualifications   
      http://www.ssa.gov/disability/professionals/bluebook/                                         (For all disabilities)
      http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm  
      http://www.ssa.gov/disability/professionals/bluebook/114.00-Immune-Childhood.htm

    Social Security On-line Forms
      http://www.ssa.gov/online/forms.html

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10.  HOW TO TALK TO YOUR PHYSICIAN

    Be assertive and take an active role to improve your health care.
    Good communication makes for good medicine)
      http://elfstrom.com/arthritis/appointments.html

    Be Your Own Advocate
       http://www.webmd.com/healthy-aging/guide/be-your-own-health-advocate

11. MAJOR MEDICAL CENTERS

    Columbia Medical School                                                          (New York City)
      http://cpmcnet.columbia.edu/

    Duke University Rheumatology Clinic                                   (Chapel Hill, North Carolina)
      http://www.dukehealth.org/Services/Rheumatology/index?search_highlight=rheumatology_and_immunology

    Emory University Vasculitis Clinic                                        (Atlanta, Georgia))
      http://medicine.emory.edu/divisions/lowance_center   (Chose rheumatology under “Divisions & Centers”)

     Massachusetts General Hospital                                             (Harvard Univ., Boston, MA)
      http://www.mgh.harvard.edu/

    Mayo Medical Center                                                                  (Rochester, Minnesota)
      http://www.mayo.edu

    Mount Sinai Hospital                                                                (Toronto, Ontario,  Canada)                                                                             
      https://www.mtsinai.on.ca/rmcad/contact.htm                                                 

    National Jewish Medical and Research Center                    (Denver, Colorado)
      http://www.njc.org/

    Rheuma-Klinik Bad Bramstedt
      http://www.rheuma-zentrum.de

    Rheumatology and Autoimmune Clinic                                (Toronto, Canads)
    Mount Sinai Hospital - Rebecca MacDonald Centre
      http://www.mtsinai.on.ca/rmcad/Default.htm
      http://www.mtsinai.on.ca/Rheumatology/default.htm                               

    Vasculitis Service and Vasculitis Clinic                                  (Cambridge, U.K.)
      http://www.addenbrookes.nhs.uk/serv/clin/med/vasculitis1.html

    University of Alabama Hospital - Vasculitis Clinic                (Birmingham, Alabama)
      http://www.health.uab.edu/12247/

    University of Birmingham                                                            (Birmingham, U.K.)
      http://webrheum.bham.ac.uk/vasculitis/

    University of California - Los Angeles, California
      http://healthcare.ucla.edu/shared/contact-us-hc
      http://rheumatology.med.ucla.edu

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12. RELATED AUTOIMMUNE DISEASE WEB PAGES

    Anatomy of the Immune System
      http://www-micro.msb.le.ac.uk/MBChB/2b.html

    Apheresis (Blood-cleansing)
      http://www.baxter.com/services/professional_education/iv_therapy_ce/apheresis/apheresis.html

    Autoimmune Diseases - Nat'l. Institutes of Health - NIAID
      http://www.niaid.nih.gov/publications/autoimmune/autoimmune.htm

    Autoimmune Diseases - Johns Hopkins
      http://autoimmune.pathology.jhmi.edu/whatisautoimmunity.cfm  

    Avascular Necrosis
      http://www.niams.nih.gov/hi/topics/avascular_necrosis/  

    Bactrim (Septra) Desensitization
      http://www.projinf.org/fs/pcpproph.html#8day

    Breast Abnormalities - Systemic Diseases
      http://radiographics.rsnajnls.org/cgi/content/full/19/suppl_1/S11?maxtoshow=#SEC2

    Central Nervous System (CNS) Vasculitis
      http://vasculitis.med.jhu.edu/typesof/cns.html
      http://www.cnsv.net/

    C-Reactive Protein Test     
      http://www.clevelandclinic.org/heartcenter/pub/guide/tests/labtests/crp.htm
      http://uwcme.org/courses/rheumatology/rheumlab/crp.html

    Dental Infection and Disease
      http://www.rheumatic.org/teeth.htm
      http://www.aafp.org/afp/980201ap/taubert.html

    EULAR - European League against Rheumatism
      http://www.eular.org/  

    Immunoglobulin - Warning
      http://www.fda.gov/medwatch/safety/1998/igiv.htm

    Immune System - NIAID Net News
      http://www.niaid.nih.gov/final/immun/immun.htm  

    Immune System - NIH/NCR tutorial  (Excellent, with illustrations in color)
      http://press2.nci.nih.gov/sciencebehind/immune/immune00.htm

    Immunology - General
      http://www.cehs.siu.edu/fix/medmicro/genimm.htm

    Leukocytoclastic Vasculitis
      http://www.emedicine.com/derm/topic185.htm

    Living with Vasculitis Booklet - University of Birmingham       (Requires Adobe Acrobat)
     http://webrheum.bham.ac.uk/Vasculitis/Booklet/LivingWithVasculitis.pdf

     Mixed Connective Tissue Disease
      http://www.AboutArthritis.com/script/main/art.asp?articlekey=412

    Osteoporosis
      http://www.nos.org.uk/
      http://www.osteoporosis.ca/                                                    (English and French)
      http://www.nlm.nih.gov/medlineplus/osteoporosis.html

    Peripheral neuropathy - Managing the pain, frustration
      http://www.ninds.nih.gov/health_and_medical/disorders/peripheralneuropathy_doc.htm
      http://www.projinf.org/fs/sneuro.html

    Pitfalls in Diagnosis and Treatment of Systemic Vasculitides
      http://www.takayasu.org/Doc14.PDF                                    (Requires Adobe Acrobat)

    Relapsing Polychondiritis
      http://www.bcm.tmc.edu/oto/grand/111794.html

    Rhuema21st - Physicians Info on Latest News for Rheumatologists.
      http://www.rheuma21st.com/search_index.html

    Rheumatology Web
      http://www.rheumatologyweb.com/

    Staphilococcus Aureus
      http://www.bact.wisc.edu/microtextbook/disease/staph.html

    Stem Cell Transplant to Treat Autoimmune Diseases - A fairly detailed study
     http://www.nature.com/nature/journal/v435/n7042/full/nature03728.html

    Understanding Autoimmune Diseases
      http://www.niaid.nih.gov/publications/autoimmune/autoimmune.htm#preface

    Understanding the immune system - National Cancer Institute
      http://press2.nci.nih.gov/sciencebehind/immune/immune00.htm

    Vasculitis Center - Johns Hopkins Univ.
      http://vasculitis.med.jhu.edu/

    Vasculitis - CNN Health Library
      http://www.cnn.com/HEALTH/library/DS/00513.html  

    Vasculitis - Difficulties with ACR Standards
      http://www.acponline.org/journals/annals/01sep98/acrclass.htm

    Vasculitis - Mayo Clinic
      http://www.mayoclinic.com/health/vasculitis/DS00513

    Vasculitis - Power Point Presentation (Adobe Acrobat .pdf file)  (Not up-to-date, no "biologicals")
      http://intmedweb.wfubmc.edu/download/vasculitis.pdf  

    Vasculitic  Diseases - Power Point Presentation (Adobe Acrobat.pdf file)   (Black and white)
      http://www.kcl.ac.uk/depsta/biomedical/ancehubi/ja3271/2004-vasculitis.pdf  

    Vasculitis Diseases - HTML Slide presentation (Same as above but in color)  
      http://www.kcl.ac.uk/depsta/biomedical/ancehubi/ja3271/2004-vasculitis.html

    Vasculitis - European Union Vasculitis Study Group (EUVAS)
      http://www.vasculitis.org/

    Vasculitis EUVAS - Slide Show - Brief review of "Chapel Hill Nomenclature"
      http://www.vasculitis.org/slideshows/sld001.htm

    Vasculitis, Systemic - Pitfalls in Diagnosis and Treatment
      http://www.takayasu.org/Doc14.PDF

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13.MEDICAL LABORATORY TESTS

    ANCA Interpretation
      Frequency Of  cANCA, pANCA, Anti-MPO & Anti-PR3 In Vasculitis
       http://dpalm.med.uth.tmc.edu/clinicalservices/Interps/anca.HTML

    ANCA Tests:
      Comparison of different tests for detection of antineutrophil cytoplasmic antibodies
       http://www.diagnostics.nu/upload/AUTOIMMUNITY/Elias-Journal/WEB_EJE_2_03_Csernok.pdf           
   
    ANCA Tests - Methods and Interpretation
      http://www.specialtylabs.com/books/display.asp?id=47
   
    Apheresis including plasmapheresis
      http://www.baxter.com/services/professional_education/iv_therapy_ce/apheresis/apheresis.html  

    Blood Test Table - Understanding your CBC test
      http://www.aidsmeds.com/lessons/CBCtest.htm  

   Corticotrophin-Releasing Hormone testing  (Can be useful to determine if steroid discontinuance is safe)
      http://www.ncbi.nlm.nih.gov/pubmed/10612488?dopt=Abstract

    ESR/SED (Erythrocyte sedimentation rate)
     http://www.healthy.net/library/books/textbook/Section2/esr.pdf

    ELISA (Enzyme-Linked Immunosorbent Assay)
      http://www.uq.edu.au/vdu/ELISA.htm

    Lab Test Common for Lupus
      http://www.mtio.com/lupus/lfalt1.htm

    Lab Tests On-Line:
     Wonderful World of Tests - Links to various on-line lab test information
       http://www.labtestsonline.org/index.html     

    Lab Test - Visual Algorithm - Vasculitis
      http://www.arupconsult.com/Algorithms/VasculitisAdults.pdf
      http://www.arupconsult.com/Algorithms/VasculitisChildren.pdf

    Radioagraphic Tests for WG - Scroll down to Sections 4-9
      Thoracic Imaging of Wegener's Granulomatosis
      http://www.emedicine.com/radio/topic743.htm

    Systemic Rheumatic Diseases - Laboratory Testing - 1998
      http://www.postgradmed.com/issues/1998/02_98/ward.htm

    Urinalysis:
      Slides of Microscopic Examination
      http://www.lhsc.on.ca/lab/renal/

    Urinalysis  Tutorial
      http://medlib.med.utah.edu/WebPath/TUTORIAL/URINE/URINE.html      

(Click here to return to Index)

14. NATIONAL ORGANIZATIONS

    American Autoimmune-Related Disease Association.
      http://aarda.org
      http://www.aarda.org/patient_information.php            (Requests for information)
      http://www.aarda.org/women.php                                   (Autoimmunity & Women)
      http://www.aarda.org/articles.php                                   (InFocus Articles)
   
    American Behcet's Disease Association
      http://www.behcets.com

    American Hospice Foundation
      http://americanhospice.org                                               (Articles and Links)

    American Lung Association
      http://www.lungusa.org/

    Central Nervous System Vasculitis
      http://cnsvfinc.org

    Churg-Strauss Syndrome Association
      http://cssassociation.org

    National Eye Institue
      http://www.nei.nih.gov

    National Institute for Arthritis and Musculockeletal and Skin Diseases
      http://www.nih.gov/niams

    National Organization for Rare Diseases
      http://www.rarediseases.org/search/rdblist.html         (Orphan Disease List)
      http://www.rarediseases.org/search/rdbsearch.htm   (Rare Disease Database)

   National Institute of Allergy and Infectious Diseases
      http://www.niaid.nih.gov                                                              (Home Page)
      http://www.niaid.nih.gov/cgi-shl/contacts/contacts.cfm     (Key contacts)
      http://www.niaid.nih.gov/factsheets/wegeners.htm             (WG Factsheet)
      http://www.niaid.nih.gov/research/labs/lir6.htm                    (WG Study Protocols)
      http://www.niaid.nih.gov/dait/pdf/ADCC_Final.pdf         (Report to Congress in
                                                                                                            Autoimmune Disease Research)
   National Institute of Dental and Craniofacial Research
      http://www.nidcr.nih.gov/

    National Institutes of Health

    Orphan Drug Product Development
      http://www.fda.gov/orphan

    Rare Diseases Clinic Research Network
      http://www.rarediseasesnetwork.org/

    U.S. National Libraries of Medicine - Public Archive of (some) Life Science Journals
      http://www.pubmedcentral.nih.gov/
      http://www.ncbi.nlm.nih.gov/pmc/  

    U.S. National Network of Libraries of Medicine - Medline database
      (Although both search Medline, they can give different results)
      (The NCBI web site has access to many more databases than does Gateway)
      http://www.ncbi.nlm.nih.gov/entrez/query.fcgi   (Search engine for the NCBI to search PubMed database)     
      http://gateway.nlm.nih.gov                                       (Search engine for Nat'l. Library of Medicine for health matters)     
   
    The Virtual Hospital -
      1996 Presentation and Discussion of Wegener's Granulomatosis
      http://www.vh.org/Providers/TeachingFiles/PulmonaryCoreCurric/Wegeners/Wegeners.html

(Click here to return to Index)

15. GENERAL AND MEDICAL SEARCH ENGINES

     Google Search Engine
      http://www.google.com                                  (Use Google to find other search engines)
      http://news.google.com                                  (Search for recent news)

     Search Health On The Net
      http://www.hon.ch/

    Search Intellihealth - Harvard Medical School's Consumer Health
      http://www.intelihealth.com

    Search Medscape                                           (Registration Required)
      http://www.medscape.com/px/mscpsearch?searchfor=searchform

    Search Medical for Medical Databases
      http://www.diseasesdatabase.com/ddb14057.htm  

    Search Medical News
      http://www.medicalnewstoday.com/

    Search Medical Resoures                            (Links to many journals, associations, & databases)  
      http://www.medbioworld.com/

    Search Merck Manual - Home Edition
      http://webseek.merck.com/query.html

    Search National Center for Biotechnology Information (Many medical resources)
      http://www.ncbi.nlm.nih.gov/entrez/query.fcgi  

    Search New England Journal of Medicine          (Jan. '75 to Date)
      http://content.nejm.org/search.dtl

    Search for Physicians by Specialty                       (Chose "Search for a physician,
      http://www.ama-assn.org/aps/amahg.htm          then "Accept", then "Medical Specialty",
                                                                                              then enter requested info, then scroll
                                                                                             down to "search from an expanded
                                                                                              list of medical practice specialties)
                                                               (Click here to return to Index)