VASCULITIS AND SOME AUTOIMMUNE YAHOO E-MAIL GROUPS
Last update 16 August 2007
Note - Does not include MSN groups nor other email group suppliers
  • A number of email groups provide for support and information to vasculitis patients. 
  • Many can be found by searching Yahoo and MSN groups. 
  • There may be many other listserv and majordomo supported groups that don't appear on searches. 
  • To access Yahoo email groups, you must have a Yahoo Identity (ID) and password, and be signed in.
  • After signing in, go to http://health.dir.groups.yahoo.com/dir/Health___Wellness
  • When the search results come up, sign in if you haven’t already done so, then click on the name of the one you want.
  • Search for the particular group subject.
  • When the group page comes up, click on “Join This Group”.
    •                  
    # of members as
    of 12 Jan. 2007

    Selected Autoimmune Diseases E-mail Groups
      
          191                         autoimmunediseases
        
            59                         auto_immune_diseases
         
            12                         autoimmunedisorders

    Selected Arteritis E-mail Groups
     
             7                         arteritis   (Vasculitis Clinical Research Consortium)

           25                         giantcellarteritis

           <5                        Takayasus_arteritis

    Vasculitis E-Mail Groups
        
      401                            CSSISG    (Churg-Strauss Syndrome Support Group)

        27                            churg-strauss-syndrome

          6                            churg-strauss_syndrome

          7                            Churg-Strauss-Syndrome - SCS Solidarity - French CSS E-mail Group   
                            Moderated - For researchers and clinicians only

     258                            Henoch_Schonlein  (Purpura)

       92                            HSP-Adults   (Henoch-Schonlein Purpura Adults)

       13                            MPAvasculitis   (Microscopic Polyangiist (MPA)

         6                            cutaneouspan  (Cutaneous Polyarteritis Nodosa)

     672                            polyarteritisnodosa

       21                            polyarteritis_nodosa
     
       55                            cnsv    (Central Nervous System Vasculitis Group)

        41                           vasculitis-discussion

       41                            vasculitis

         --                            vasculitis-ed-center@yahoogroups.com  DISCONTINUED

       28                            irvas  ( Indian - physicians/rheumatologists only)

     193                            vasculitis-nl   (Vasculitis - Netherlands )

       16                            Rheumatoid_Vasculitis

     662                           savvy

       20                           Vasculitissupport

       79                            Vasculitissupportgroup

       41                            vasculitissurvivors

    Wegener's Granulomatosis E-mail Groups

     275                           wgdiscussion (replaced wg-discussion)

         ?                           clubweg (stories, photos, etc.)

         7                            wegenersgranulomatosisaustralia

        0                            wg-discussion  (DISCONTINUED 30-06-06)

        4                            fightwegeners

    149                            Wegeners_Granulomatosis  (International Rare Disease Network)

       ??                            wegenersdisease   (European WG E-mail group-English)

       71                            parents4wegeners - Wegener's Granulomatosis - Parents E-mail Group - Moderated
                                [To join, email blades49456@sbcglobal.net or     rachels1@comcast.net requesting an invitation]
              
       41                           wegeners-teens-only - Wegener's Granulomatosis - Teens Only Group - Moderated
                                [To join, email blades49456@sbcglobal.net or     rachels1@comcast.net requesting an invitation
              
      18                            Sc_wg_support_group  (South Carolina support group)

      64                            weggies4weightloss